The Hearts For Ezra Foundation is a 501 (c)(3) that was started in 2013 with the mission of raising awareness and fighting for a cure for Spinal Muscular Atrophy. HFE started as the idea of Dr. Kieran Kammerer, Ezra’s pediatrician, as a way to honor Ezra and is run by his parents Emily and Ethan Bessey. Our hope is that with awareness comes funding and with funding comes a cure.