The Hearts for Ezra Foundation hosted two events each year for many few years, a fundraiser in March and a Kids In Motion event held during Old Hallowell Day in July.  

If you have a child who has recently been diganosed, or if you or someone you know is looking for information, we encourage you to visit

Heart Rocks is a way for people to symbolically share their love with Ezra.

We are always looking for energetic volunteers to make our events huge successes! If you would like to get involved, please email:

Your donation is greatly appreciate and helps us reach our goals of spreading awareness and fighting for a cure.

Contact us to learn more or to get involved.

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The Hearts For Ezra Foundation is a 501 (c)(3) that was started in 2013 with the mission of raising awareness and fighting for a cure for Spinal Muscular Atrophy. HFE started as the idea of Dr. Kieran Kammerer, Ezra’s pediatrician, as a way to honor Ezra and is run by his parents Emily and Ethan Bessey. Our hope is that with awareness comes funding and with funding comes a cure.