The Hearts for Ezra Foundation has been featured in many media outlets. For recent print or online media features please see below.


We welcome inquiries from the media- please contact us.

From the Portland Press Herald - story and video

Watch Emily and Ethan's interview on WTNH

Ethan and Emily were interviewed on WCSH

From the Kennebec Journal- An article featuring a Hearts for Ezra Event

From the Bangor Daily News- "Hearts for Ezra: How this baby boy’s death could change your life"

An Op-Ed from the Sun Journal

An Op-Ed that ran in the Kennebec Journal and the Waterville Sentinel

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The Hearts For Ezra Foundation is a 501 (c)(3) that was started in 2013 with the mission of raising awareness and fighting for a cure for Spinal Muscular Atrophy. HFE started as the idea of Dr. Kieran Kammerer, Ezra’s pediatrician, as a way to honor Ezra and is run by his parents Emily and Ethan Bessey. Our hope is that with awareness comes funding and with funding comes a cure.