Smuttynose 1/2 Marathon

Ethan Bessey (Ezra's Dad) and his friend's Anson Smith, Aaron Smith, Nathan Allen and Brian Peck (aka Team Ezra) will be running the Smuttynose 1/2 Marathon on Sunday October 5 in

Hampton, NH.


Team Ezra will be running to "Raise Awareness and Fight for a Cure for SMA" and we need your help!  100% of the donations will go to further the Hearts for Ezra mission.  With your help, we will continue to be able to fund research and put on events to raise awareness of Spinal Muscular Atrophy and carrier screening.  Thank you for your support and please share with your friends.


If you would like to join Team Ezra and run with us on October 5, please email

The Hearts For Ezra Foundation is a 501 (c)(3) that was started in 2013 with the mission of raising awareness and fighting for a cure for Spinal Muscular Atrophy. HFE started as the idea of Dr. Kieran Kammerer, Ezra’s pediatrician, as a way to honor Ezra and is run by his parents Emily and Ethan Bessey. Our hope is that with awareness comes funding and with funding comes a cure.